What is Cerebral Palsy?

Cerebral palsy is a physical disability that affects the body’s ability to control its muscles. There are different kinds of CP, and within each type, varying degrees, from mild to profound. People with CP may be completely independent, or need complete care, or anything in between. Everyone who lives with cerebral palsy has a unique experience. Many people with CP have coexisting conditions, and many do not.

When I was young I was told that CP is permanent, but “not progressive.” That is, it does not worsen over time. However, it’s more accurate to say that while the damage to the brain does not progress, how CP affects the body over time, can and does change. For me, mild spastic diplegia means that the muscles in my hips and legs are very tight. I have limited control of my pelvis/legs/ankles/feet, and I have very little balance. My left side is more affected than my right. As I get older, I am in more pain, experience more fatigue, and yes, I am noticing a decline in overall function.

For more information about cerebral palsy in general, a great place to start is the Cerebral Palsy Foundation. If you have CP or you are a caregiver for someone with CP, another great organization is the Cerebral Palsy Research Network. Take part in their surveys; let your voice be heard! Newly launched, we have Cerebral Palsy Grows Up!

Do you want to read books about CP or about people who have CP? I’ve started a list on goodreads! Please add to it!

I am very aware that because I live in the United States, I have access to more resources than what may be available in other countries. I’ve tried to compile a list of cerebral palsy organizations and CP-specific treatment centers from around the world. Let me know if you know of more and I’ll add them. This is as far as I’ve gotten:

Australia

CP Australia

CP Alliance

Cerebral Palsy Support Network

Bosnia and Herzegovina

CPossible

Brazil

Instituto Nossa Casa

Canada

CP Canada Network

CP Association of BC, with a plethora of other useful resources.

China