Two Years with ExoSyms and Cerebral Palsy

On this final day of June, I want to acknowledge that I’ve had my ExoSyms for two years. Well, I’ve owned them for two years this month, but as we know, I’ve worn them for much, much less time than that.

When I was first fitted for and trained to use my ExoSyms, I was told to expect to get the full benefit from them after two years of dedicated work with them. In June 2020, I was unable to imagine what two years down the road would look and feel like. I began documenting “Day 15,” “Day 50,” “Day 100” and taking weekly videos of my progress. Eventually, I stopped counting the days.

So here’s to us. Here’s to all of us who try something new. Who invest hope and time, and perhaps many thousands of dollars into something that might make our lives better. Who have family that supports us, driving us to appointments and holding our hands. 

Here’s to us who have to acknowledge and adjust when our new adventure doesn’t go the way we thought and hoped it would. When injuries and illnesses interrupt and disrupt our vision of what our life would be.

Here’s to us. We are many.